Vicky Phelan is to seek government funding for an independent advocacy group for the women and families impacted by the scandal.
The terminally ill mother- of-two who brought the cervical cancer debacle to light is setting up the support group as the Government comes under pressure to resource independent advocacy services for patients who need answers from the health system when things have gone wrong.
However, Ms Phelan said this weekend that an independent advocacy service was "essential" for all those harmed by the health service.
"There was nowhere for us to go. We had to set up all of this ourselves. The only people who had contact details for all of the women and families affected by this are the HSE, the very organisation we can't trust," said Ms Phelan, who is launching the group with Stephen Teap, whose wife Irene died of cervical cancer last year after two misread smear tests.